Forum

Hi,
"Hello. I’m in the beginning stages of creating a support network for females diagnosed with MRKH and to bring awareness to those who don’t know about this syndrome. This group can also be useful to friends and families who know someone with MRKH, who want to understand what a female with MRKH goes through and possible ways to support them. I want this group to be a safe place for females to connect with one another on issues we deal with because of MRKH. I also want to use this group to bring awareness to others who do not have this syndrome, since many people (including doctors) are not aware this syndrome exists. I understand this may be a delicate subject for many females suffering from this (including myself), however knowledge is power, and the more people that become aware of Mayer Rokitansky Kuster Hauser Syndrome, the better.** 1 OUT OF 5,000 GIRLS ARE DIAGNOSED WITH MRKH! This is not a rare syndrome!** It’s my goal to bring support, hope, comfort, love, and awareness to those suffering with this syndrome, and to promote awareness to those who know nothing of MRKH! ♥
Contact me on: 0210537070,email - mrkhgnz@gmail.com or we can connect on face book by liking the page,URL as below

http://www.facebook.com/pages/MRKHgroupnz/321902064512626